Blog | Patient Stories

Learning Together

Do you ever feel that your medical provider visits are rushed? Do you leave feeling confused or neglected? Many of us feel frustration when dealing with our medical providers because it seems like we are not being heard, taken seriously, or even cared about. For most of us, having a meaningful conversation with our health care provider just doesn't happen. At SLEEP 2017, the MyApnea.org patient leaders, with help and guidance from Dr. Keep reading

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By Ruby on February 20, 2018 Feb 20, 2018 in Patient Stories

Doctors are people too

Like most of you that might read this blog, I could list "patient" as my occupation. Not that we are hypochondriacs (far from it) but we often suffer with multiple health issues. Besides general health problems like colds, flu, aches and pains most of us also deal with sleep problems, diabetes, heart conditions, arthritis, and the list goes on and on and on. Keep reading

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By Ruby on April 26, 2017 Apr 26, 2017 in Patient Stories

Maybe It's Just Me

I have sleep apnea and use a full face mask. I am learning what it means to have sleep apnea and the dangers of being misdiagnosed or undiagnosed. I understand the health issues that can and often do go along with sleep apnea. I believe that I need to educate myself as much as possible because I am the only one who truly has control of my health. I also have Restless Leg Syndrome and fibromyalgia. Maybe it's just me but people don't seem as ready to talk about having sleep apnea. Keep reading

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By Ruby on November 16, 2016 Nov 16, 2016 in Patient Stories

Sleep Conference 2016: Successful patients-researcher collaborations

"The only thing that doesn't change is change itself." Whether we are involved in the pushing, the pulling, the being-dragged, or are just being sucked along in the wake, we are all moving into the era of “patient-centered” medicine and research. As you might imagine, changes to "patient-centered" healthcare are evolving at different rates in different areas, and sleep medicine in general and sleep apnea in particular are no exception. Keep reading

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By BrainsNeedSleep on July 19, 2016 Jul 19, 2016 in Patient Stories

The Person Behind the Mask

This isn't a blog about how long it took before I was diagnosed with sleep apnea. It isn't about finding a good sleep doctor or the sleep studies I have had. It isn't about the type of apnea I have, or about the treatment options, or what my health risk factors are with sleep apnea. These are all very important and need to be addressed and understood but this blog is about how it affects me emotionally and socially. Keep reading

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By Ruby on May 17, 2016 May 17, 2016 in Patient Stories

Complex Sleep Apnea: A Patient's Story

One Morning I can tell you the morning it happened. It was remarkable because I remember only three others like it in my life, and they happened a very long time ago. Not new to CPAP use and struggling with the hose, mask, wheezing machinery, rainout, red-lined-face and mask-leak-induced dry eyes since 2008, I had received some benefit overall, but not much. Keep reading

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By MyApnea on February 1, 2016 Feb 1, 2016 in Patient Stories