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Blog | Announcements

New MyApnea Surveys: Leveraging data to improve lives

The MyApnea surveys have been updated to be more responsive to questions patients and researchers are interested in. Whether you are updating your surveys or completing them for the first time, sharing data is incredibly valuable to the research community. People contribute to society in many ways. Some people give to charity, others volunteer, still others take care of family members in need. When you fill out these anonymous surveys, it should feel the same way. Keep reading

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By RebeccaR on April 25, 2018 Apr 25, 2018 in Announcements

'Voice of the Patient' Study – COMING SOON!

Sleep apnea care isn’t tailored for patients. Or at least not tailored enough. That’s why researchers at MyApnea.Org want to hear from you. They want to learn more about your experiences getting diagnosed and treated so that sleep apnea care reflects your priorities and your needs. Dr. Susan Redline (principal scientist for MyApnea. Keep reading

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By RebeccaR on December 21, 2017 Dec 21, 2017 in Announcements

Attention women, and those who love them!

Attention women, and those who love them! One of the primary issues many of us patients talk about is the problem of getting our sleep disorders diagnosed before they have done too much damage. Sleep apnea, as you know from reading on this site, is a sneaky but potentially deadly problem. And women in particular don't get diagnosed as quickly or as often as men. Keep reading

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By RebeccaR on December 6, 2017 Dec 6, 2017 in Announcements

The Case of the Didgeridoo

Last time we got the ball rolling on how the MyApnea.org community could provide a forum for sharing and testing new solutions to the challenges of living well with sleep apnea. This time we would like to share an experiment people with sleep apnea did to see if playing the didgeridoo helped their breathing and tell you more about how to put an N of 1 experiment together. Back in 2015 a blog post here on MyApnea. Keep reading

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By HealthHackingWithNof1 on October 30, 2017 Oct 30, 2017 in Announcements

Free Online “Teach-Out”: Sleep deprivation & what to do about It

The University of Michigan Sleep Disorders Center and Office of Academic Innovation are excited to announce that a new Teach-Out, Sleep Deprivation: Habits, Solutions, and Strategies, will begin on Monday, October 23. This free, online event is open to participants around the world, free of charge. Keep reading

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By MyApnea on October 17, 2017 Oct 17, 2017 in Announcements

American Academy of Sleep Medicine- Join us for a Focus Group Webinar

Your opinion matters! Assess and provide your viewpoint on the development of a patient- friendly version of the Clinical Practice Guideline Diagnostic Testing for Adult Obstructive Sleep Apnea which was published in March , 2017. Why are we doing this? The goal is to promote credible and accessible health information that would better facilitate dialogue between you and your health care practitioner. Keep reading

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By SarahHashmi on October 16, 2017 Oct 16, 2017 in Announcements

Necessity is the Mother of Invention

We have probably all heard the adage, “Necessity is the Mother of Invention.” Like so many of the things your parents taught you, this one is in fact true. When whatever is available to solve a problem is inadequate, people will search for new solutions. Current research strongly supports the notion that people will seek to meet their unmet needs through experimentation and innovation. Keep reading

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By HealthHackingWithNof1 on October 4, 2017 Oct 4, 2017 in Announcements

AASM: What are patient priorities for surgical treatment?

Written by Christopher Harrod, AASM The American Academy of Sleep Medicine (AASM) is in the process of updating its ‘Practice Parameters for the Surgical Modifications of the Upper Airway for Obstructive Sleep Apnea in Adults’. An important step in the guideline development process is to get input from stakeholders who may be impacted by the guideline, including patients. The AASM has developed a survey to help identify and prioritize outcomes that are important to patients. Keep reading

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By MyApnea on September 7, 2017 Sep 7, 2017 in Announcements

New Discovery: Patients and Doctors Are On The Same Team!

For 31 years, the Associated Professional Sleep Societies has hosted a conference called SLEEP. SLEEP 2017 was held in Boston this spring and featured five packed days of presentations on the latest developments in sleep medicine. Thousands of clinicians and scientists attended. This year, a group of patient leaders from MyApnea.Org attended and led a new, exciting, and much needed discussion about the role of patients as partners in advancing sleep health. Reflecting a core value of MyApnea. Keep reading

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By RebeccaR on August 21, 2017 Aug 21, 2017 in Announcements

Help design better ways to understand sleep health!

Our goals: We are developing an exciting new project to better understand how sleep influences health and well-being. We are planning ways to track important aspects of sleep and health over time. How are we planning on doing this? We will ask people to answer some questions on their sleep patterns and treatments and to take some short brain quizzes that test memory and attention. We will provide feedback to some of the questions and brain quizzes. Keep reading

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By Carolina on July 31, 2017 Jul 31, 2017 in Announcements