Seeking Patient Input on Insomnia Guidelines

The American Academy of Sleep Medicine (AASM) is seeking PATIENTS for input on the new AASM Behavioral Treatment of INSOMNIA​ Guidelines

Insomnia is a common disorder affecting about 10% of the population. As part of their effort to update recommendations for treatment they start with a question: which treatments are best to improve symptoms, and which patients should use them? To answer that question, doctors and scientists examine the research to discover how well different therapies work. Like solving a mystery, they collect clues from each clinical study to build the best case for which treatments should be used and which should not. They piece together evidence on symptom improvement as well as negative side effects.

However, there is one important piece of the puzzle that is often missing: What do PATIENTS want from their medical care? How does their condition impact their daily lives? And how can care be improved to meet their needs?

When patients get involved in guideline development, they have the chance to express their opinions and priorities for what they want from their medical care. Your input shapes our research questions so we focus on the symptoms that are most important to you. Then we can collect evidence about how treatments improve those exact symptoms and recommend treatments based on what works and what doesn’t. We also ask patients about the side effects of those treatments to find out what is a tolerable balance of symptom improvement vs. side effects.

What does it involve? It would involve taking part in a phone call and completing a survey: We will be sending you a survey to ask you, representing the average patient, which symptoms are most important to improve and which side effects might be tolerable to reach that improvement. Your responses to this survey indicate the highest priorities of patients so the guideline developers know where to focus their efforts. Once completed, this guideline will advise doctors on the best way to care for patients, and thanks to you, the advice will focus on what patients care about the most​.

For further information, please contact: Jon Heald (

"Insomnia" by "Robot Brainz" is licensed under CC BY-NC-ND 2.0.

By DrSuzieB on October 31, 2016 Oct 31, 2016 in Announcements
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bankseystheory +0 points · about 1 year ago

Very simple. I just sent them an email with my experience of insomnia.

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SusanR +0 points · over 1 year ago

Great opportunity for patients to provide much needed input on treatment of insomnia. Insomnia can occur by itself, or also in conjunction with sleep apnea or other sleep disorders, affecting about 10 to 15% of the population. Many studies now indicate that untreated insomnia can have a wide range of negative effects on physical and mental health, and well-being. Guidelines are used by clinicians and others in defining "best practices" for treating conditions such as insomnia. Patient input into new guideline development will help ensure guidelines reflect the needs of the patients they are developed for. Thank you Dr. Bertisch for inviting patients to be part of this process!