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Billapnea

Billapnea
Joined Oct 2018
Billapnea
Joined Oct 2018

Based on what you told me, I have sent you the last week of reports. I'm not the best direction follower, so please let me know what I need to improve on and thanks for being patient with me. I didn't have every graph you asked for. Here's what I have: Event Flags, Pressure, Flow Rate, Leak Rate, Snore, Resp Rate, Tidal Vol, Minute Vent, Insp. Time, Exp. Time, AHI. I want to learn to control this machine and fix the settings to something you recommend. My problem is that he has set it in a way that does not allow me access. That's why I fixed up this filter the way I did. I had 8 days in a row that averaged 15 HCI and I called him Friday but he couldn't talk to me until this Tuesday and I was looking for a way out of this torture until Tuesday. I want to keep a filter in the mix from now on, but as long as the machine works great, I have no reason to keep reducing the pressure by stuffing it with materials. In fact, I'd like to stop that ASAP. However, I will use it tonight, hopefully for the last time. I don't trust this guy. He doesn't seem to care. Plus, as I was talking through the receptionist to him on the phone, and was talking about how my Clear Airway Apneas had gone up, due to the mask situation, he suggested I look into a machine that was better at dealing with Central Sleep Apnea. This recommendation came without looking at any of my reports at all. So, I can see what motivates this guy and don't want him in charge of my breathing. Do I have rights? I feel like I ought to. I own that machine. The 1400 dollars that it cost, I paid in full because I don't have insurance. I would like to tell him I want control of the BIPAP because I met an on line expert and would like to get my IPAP and EPAP numbers from her from now on. My plan is for you and I to get it right and then, set up a meeting with my doctor. I'm sure you've figured out by now, I don't have insurance and don't want to pay a lot for sleep studies when, clearly, it's not necessary. Or more accurately, I'm currently in the process of completing sleep studies with a very helpful, on line individual who knows what she's doing. I will wear that medium mask if you ask me too, but I don't see the point of using a mask that, clearly is the incorrect fit. It slips up toward the bridge of my nose and when it does, it pretty much completely cuts off my air flow. I am afraid of it and it's hard to go to sleep when you're scared of sleeping. Again, thank you for being so generous with your time, and so helpful.

I spent the weekend sorting through this info you've led me to. One thing I found was that the lowest HCI numbers were when that medium mask had some sizable leaks in it. This fact led me to believe that a 13 percent leak means about 13 percent in pressure loss. Plus when the fit was perfect, the numbers went way up. I decided that 0 percent leakage meant that too much pressure was coming through my airway. I may send you a handwritten sheet that shows a 21 day sampling of when I wore the various masks when and how the HCI would go up in a situation with very close to 100 percent non leakage. It prompted me toward taking a cpap filter I had laying around, adding some extra filter material (cut up surgical mask) to dilute the pressure. I didn't get nearly enough sleep, but I proved it to myself. I have attached this Saturday and Sunday's numbers. They obviously show a trend of calming down the HCI by calming down the air pressure. I see no need to go back to the previous non fitting mask. Hopefully, I'll get a good night's sleep tonight. I will send you those numbers. I will continue to use that filter. Tuesday, I'm going to recommend to the medical supply company owner to set me up with 17/9. I will continue to use the filter, without it's extra material and have him make adjustments downward or (probably upward until I hit my best number). If you hadn't told me about this SD card reading software, I wouldn't have gotten there so quickly. Thank you so much for your help. I will send you info over the course of the next few days, until I'm sure we've solved it. I need more, better sleep to prove it.