We use cookies and other tools to enhance your experience on our website and to analyze our web traffic.
For more information about these cookies and the data collected, please refer to our Privacy Policy.

Sierra

Sierra
Joined Jul 2018
Bio

CPAP: AirSense 10 AutoSet

Set to CPAP Fixed Mode

Pressure 11 cm

Ramp: Auto

Ramp Start: 9 cm

EPR: 2, Full Time

Mask: ResMed AirFit P10 Nasal Pillow

Canada

Sierra
Joined Jul 2018
Bio

CPAP: AirSense 10 AutoSet

Set to CPAP Fixed Mode

Pressure 11 cm

Ramp: Auto

Ramp Start: 9 cm

EPR: 2, Full Time

Mask: ResMed AirFit P10 Nasal Pillow

Canada

It sounds like you have a lot going on. I have had none of the issues you describe, but here are some of the things I have tried with the pillow issue. Prior to using CPAP I have used an orthopedic shaped memory foam pillow. It seems to minimize getting kinks in the neck, as it provides higher neck support than head support, kind of like your wedge pillow. However with a CPAP mask on, I find it is too resistant to pressure and dislodges the mask easily causing mask leaks. For that reason I have switched to a down alternative pillow, which form fits to your head neck, but does not have the same push back resistance on the mask. Costco has them for about $18 a pair.

Some people suffer from positional apnea, or restrictions caused by your head position when sleeping. I do not, but those who do report that wearing a cervical collar during sleep helps by keeping the neck more aligned.

Another issue that CPAP users of nasal masks have issues with is the mouth coming open during sleep. It is often called mouth breathing, but with CPAP pressure on your nose, it is nearly impossible to breathe through your mouth. However, if you do open your mouth and your tongue does not block the airway, you can get a major flow of air out of your mouth which is being supplied from the CPAP. That can cause a dry mouth and irritation. In your case without a CPAP you may be actually breathing through your mouth and causing issues with your tongue. Just guessing. I deal with the air leakage through my mouth by using paper medical tape on my mouth to force all air flow through the nose, and not the mouth.

Yes, in theory I have a GP overseeing my care. I have diabetes (my wife as well), so we are seeing him every 3-6 months. My wife asked to have a sleep study done as she was having sleeping issues, and he prescribed one. It was a home study, and came back as severe apnea at about 67 AHI. I was a much more reluctant candidate as I could see what she was going through using a CPAP, and I really didn't want any part of it. I was getting good sleep, and really did not have sleep issues other than I was snoring, and that obviously was bugging my wife. I finally got coerced into completing a questionnaire, and I failed that, so I got the home sleep study prescribed as well. My AHI came back as lower but still severe at 33. The study lab which was the same one for both of us, send the results to the GP recommending a CPAP, and the GP just rubber stamps it.

The way the government health care system works in our area is that the sleep study, and a two week trial of a CPAP, is fully covered at no cost. However the CPAP is not. In both of our cases the sleep study clinic offered to sell us the machines at a cost of $2400 each. After some research I found I could buy them on line for about $900 using the prescription from the sleep clinic, signed by our doctor. So we each bought one, with mine this year, and my wife about 3 years ago. At that price you get limited follow up and monitoring. That is where the do it yourself part comes in. Our GP is of very limited help. I suspect he knows very little about apena other than what it basically is.

That said, I am not complaining. I know people who have insurance and take the deluxe $2400 deal, all paid for by insurance, and I think they get short changed. Their monitoring and followup is minimal to none. They just get an auto machine set with wide min max limits and the machine does its thing. And unless the results are really bad, nothing changes.

When we bought the machine for my wife, the lady we dealt with was good enough to tell us about SleepyHead, and we have used it ever since. I frankly don't know how anyone could effectively monitor and adjust their treatment without it. One the other hand I can also make you a bit obsessive. My one criticism of SleepyHead is that it seems overly harsh on the way it rates leaks. My machine always gives me a happy face, but SleepyHead almost always is very critical. I just ignore it!