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My pressure is usually at 9, has been for years. Last night I woke up because I couldn’t breath and my machine was running at 15! What happened? I made an appointment to see my sleep dr, not until next week ugh! Any suggestions?
Biguglygremlin
+0 points
·
over 5 years
ago
Sleep
Enthusiast
Sorry boys, I'm having a bad day so this is not going to be tactful.
This problem, like so many others, is very common yet everybody seems to treat it like a new issue each time.
Yes people come to this forum with misconceptions or misinterpretations of what is happening to them but there is pretty compelling evidence that these machines can't be trusted especially if they are in auto mode.
Promoting purloined software is largely a waste of time.
Charts and numbers may be fun but how do they change the obvious solution?
If you want a machine to do something for you simply limit it's function to only the parameters that you wish to allow.
If you want it to deliver 9 but not more than 12 then limit the machine.
So like Sierra asks what is the machine and how do you make it safe?
bonjour
+0 points
·
over 5 years
ago
Sleep
Commentator
That "purloined software" knows more about what happened to mh than any of us do. I have no problem limiting data, but I prefer to do it based on data, because my mental acuteness obviously doesn't match your ability to fully understand what is happening without such data.
Ruby
+0 points
·
over 5 years
ago
Sleep
Commentator
I guess I take the middle road here. The software is useful in checking to see what is going on. But I have an issue with changing things without talking to a sleep doctor or whoever got you on the machine itself. I fully understand that seeing a doctor is not easy for many. It just seems that changing things on your own is just one step away from setting it all up on your own to begin with. Is it the right thing for you? Guess you would be the only one it hurts.
The sad reality is that many machines that newly diagnosed apnea sufferers get are simply taken out of the box and handed to them. It is becoming less frequent for titration tests to be done, and having the new user set up with a specific pressure. Instead they are handed an out of the box automatic machine set at the factory for 4 cm min, and 20 cm max. For many that actually works, or sort of works. But, unless someone sets the machine up properly for them, they will never know that their settings are not ideal.
It seems like the OP is not going to return, but that is one possible explanation in this case. The machine was set 4-20, and something has changed and now it is going higher in pressure. But without seeing a SleepyHead chart one would be just guessing.
bonjour
+0 points
·
over 5 years
ago
Sleep
Commentator
You have a choice of what to do with the info. You can choose to make the recommendations/changes yourself or you can ask for talking points with your medical team. I have led many down this path, but it does require information, the same information that is required to make changes. This happens frequently when needing more advanced care. Centrals being managed with an ASV machine is one.
As Sierra alluded to, all too often one is given the machine, told to come back in time to validate compliance and told to keep trying and see me in a year. These forums are the plug that fills that hole.
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