Help design better ways to understand sleep health!

Our goals:

We are developing an exciting new project to better understand how sleep influences health and well-being. We are planning ways to track important aspects of sleep and health over time.

How are we planning on doing this?

We will ask people to answer some questions on their sleep patterns and treatments and to take some short brain quizzes that test memory and attention. We will provide feedback to some of the questions and brain quizzes.

We need your help!

We would like your opinion about the questions you think are most important for understanding and improving sleep health.

What questions about sleep health do you think we should ask?

What information would you like to know regarding your own sleep health? Do you think getting information from tests of memory and thinking would be useful to you?

We are still designing this project and would love your feedback. Let us know your opinions and thoughts below!

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By Carolina on July 31, 2017 Jul 31, 2017 in Announcements
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OptimisticLimeFlamingo6906 +1 point · 8 months ago

Sorry, I just joined so not sure if you are still looking for questions. I’d be interested in naps and how long they are (I take naps that are 2-6 hours long due to Idiopathic Hypersomnia). All research I’ve ever read states it’s not healthy to take long naps but what if you are sleepy 24/7/365? Being sleep deprived (or at least your body seems to think it’s sleep deprived even though you get 10+ hours daily), how does this affect you. I know memory, cognitive, etc is worse for those with a sleep disorder like IH so is there anyway to remedy it? Also, I have severe Central Sleep Apnea. How is this affecting my brain? I feel getting information regarding memory and thinking is extremely important. My brain sometimes acts like I have Alzheimer’s

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Carolina +0 points · 6 months ago

Hello! Thank you for your response. Your input will be taken into consideration as we move forward with this project. For more information on Central Sleep Apnea see this blog post: https://myapnea.org/blog/2015/08/central-sleep-apnea. Central Sleep Apnea can cause daytime sleepiness, so you might consider making sure your apnea is appropriately treated. A board certified sleep physician can help you determine if your treatment is working. He or she can also potentially help with your sleepiness. There is also information available at the Hypersomnia Foundation here: http://www.hypersomniafoundation.org/about-idiopathic-hypersomnia/treatment/. If you need to find a sleep center or sleep doctor in your area, the American Academy of Sleep Medicine provides a “Find a Sleep Center” tool at http://sleepeducation.org/.

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PatientVioletBear0961 +0 points · 4 months ago

Yes, memory, attention, and processing speed all seem important to investigate. I would also be very interested to know how people's relationships and social functioning are affected by deficient quality or quantity of sleep.