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REM Sleep Behavior Disorder Please Help

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Biguglygremlin +0 points · 9 days ago Original Poster Sleep Commentator

Has anybody had experience with REM Sleep Behaviour Disorder?

It's a disorder where the locks that prevent movement during REM sleep fail.

The result is that violent actions in dreams become real actions.

Shouting, kicking, hitting, launching out of bed.

https://www.mja.com.au/journal/2017/207/6/rem-sleep-behaviour-disorder-not-just-bad-dream

If you have this disorder or know of someone who has what steps were taken?

How did it develop and progress?

What was done about it?

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Sierra +0 points · 9 days ago Sleep Enthusiast

No real personal experience other than quite along time ago well before CPAP treatment my wife told me I was yelling in my sleep and asked me what was going on. It was a dream about meeting a bear that was going to charge me and I was yelling to scare it off. Even longer ago I did actually come face to face with two grizzly bears while hunting for moose. They backed off with no shots fired, but the event is probably well recorded in my brain. Fortunately I did not have a heart attack on the spot, but I'm sure I set some records for pulse rate! That said, it has not been any sort of reoccurring issue, and overall I do sleep much better now with a CPAP. My father in law developed Parkinson's later in life which can be related to this REM sleep disorder. He was never diagnosed or treated for apnea but in retrospect I'm sure he had it. He also had issues with circulation which I'm sure were the result of low level but long standing diabetes - also went untreated. He lasted into his 80's before passing due to heart failure.

Here is a link to the Mayo site which provides a little more patient friendly information on the disorder. Note there are tabs at the top for Diagnosis and Treatment, so it is not all on one page. They raise the potential treatment with melatonin and Clonazepam. Melatonin, I'm sure is fairly innocuous, but be very careful of the Clonazepam. It is a member of the Benzodiazepines class of drugs. They can cause or aggravate apnea, and worse still in combinations with opiods can cause death due to respiration failure (lethal apnea!). There is an article in our public broadcaster news currently about someone mixing those drugs and dying as a result. A link..

I hope that helps some. From your other posts I gather you are seeing a neurologist. That would be the right expert in this area. Just watch the drugs and the potential impact on apnea...

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Biguglygremlin +0 points · 9 days ago Original Poster Sleep Commentator

Yes I can imagine that a close encounter with bears would be memorable.

We have bears here too but unless you like climbing trees they are not so scary.

I suspect that it does take significant stress to break the lock the first time and it's good that you didn't make a habit of it.

I am still hoping that in my case it was stress related and not a disease process but I can't afford to ignore it even if that is the case because on it's own it has long reaching consequences.

The Mayo link was interesting and the link it led me to was even more so.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3083495/

You would understand it more readily than I can but it seems to me that they decided the patient questionnaire was a waste of time and just went with the partner's questionnaire.

The same conclusions about credibility could be applied to Apnea patients.

https://www.mayoclinic.org/documents/msq-copyrightfinal-pdf/doc-20079462

One more to add to your collection Sierra if you don't have it already.

Should I post a copy to your wife? :)

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Sierra +0 points · 8 days ago Sleep Enthusiast

Very interesting questionnaire. Fortunately I don't take my guns to bed, so my nightmare bears are safe! About the only other issue I have had when I looked through the questions is the leg cramp thing. I still do get that from time to time. That I find very painful.

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Biguglygremlin +0 points · 8 days ago Original Poster Sleep Commentator

I used to get something like cramps from time to time but it was probably just RLS made worse by static either from polyester bedspreads or from electric blankets. Those things make my legs itch just thinking about them.

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