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Untreatable sleep-onset/transitional sleep apnea

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mossieurclo +0 points · 9 months ago

Hello all, thanks for all that input.

I myself try to stay away from chemicals and BigPharma, maybe the following ideas will be useful for someone?

I started this not so funny but surprising behavior a few weeks ago, after recuperating from a bronchitis. Which is peculiar in itself because i am NEVER sick (knock on wood) maybe because i waste lots of time sleeping 9-10 hours a day. My CSA is maybe caused by a side effect of the antibiotics i resolved taking after 2 weeks of lung tearing, since neurological causes of CSA are considered. Speaking of neurologique causes, i did not get the cov jab so it's not involved.

I feel sorry for all of you suffering this ailment when you got to sleep. Or try to. Me i get it only in the morning, when i go back to bed after the mandatory pipi.

Maybe i don't have trouble falling asleep because of the 2 glasses of white wine i have before bedtime. A (maybe not so bad, then?) habit i took while longhaul truck driving, to numb me into a sleepnight in the truck cab's sleeper, in not always ideal conditions. I am planning to stop having that sleep aid for financial reasons, but if i end up needing a pill to get to sleep i will get back to wine, i promiss.

So speaking of natural stuffs:

--when i need an anxiolitic i turn to St-John's wort. Potent enough to come with a warning of not taking it if you are on a chemical antidepressor. My wife's brief stint of Transitional CSA ended when she had that as sleep aid (look here: she also was freshly off antibiotics for her emphysema exacerbation. hmmm...) ;

--having echinacea regularly will lessen the need for antibiotics, have a massive dose (along with B, C, D, Zinc) when the FluBeast shows up;

--white willow extract instead of Aspirin, including the blood thinning effect (acetylsalycilic acid is found in willow bark).

Along with wort's sleeping aid potential, here are a few good choices among "The Good Lord's pharmacy" (as Maria Treben calls it): Valerian, Passionflower, Hops, Linden, Melissa, Chamomille, Skullcap, Lemon balm, Oatstraw, Lavender, Rhodolia, Griffonia, Ashwagandha, Hawthorn, , , ... .

You can find all these in diverse forms: capsules, tinctures, essential oils, loose leaf herbal teas (tisannes)...and as weed, around your house. Go out, pick, steep or macerate...

I am not a medecine doctor, sleep technician, whatever. I just wanted to point to good stuff i know about and/or experienced. Keep in mind lots of those also come with warnings, some have side effects, etc

Sorry for my weird Inglisch, i'm from Québec.

I would be happy and honored to have bored you all to sleep ;-)

Claude

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joseph421 +0 points · 6 months ago

Any updates from the previous users re: TSA? I dealt with the eight years ago and suddenly the symptoms are starting up again. I'm so frustrated and completely consumed by this.

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Sierra +0 points · 6 months ago Sleep Patron

Are you using a CPAP?

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joseph421 +0 points · 6 months ago

8 years ago, when this initially occurred, I had an in-lab sleep study and the results said I had complex sleep apnea. I only slept for three hours, so I’m not sure if that’s even long enough to draw a conclusion. I was put on CPAP but I was still having those issues falling asleep and then I even woke up gasping for air while on it. Then they tried a BiPaP study but I only slept for a couple hours. I had a BiPAP at home but that didn’t help either. I just stayed in that cycle of drifting then waking. I was barely getting any sleep so my sleep doctor ended up putting me on Ambien which helped immensely. I had no sleep issues while on Ambien and then 7 months later, I decided not to take it and haven’t had an episode since until a month ago. I had an appointment with my sleep doctor who seems to be sticking with apnea, but I don’t understand how I could be symptom-free for nearly a decade and all of a sudden I’m having the same issues (no gasping for air this time). It’s just that sleep onset. Two days this week I had no transitional issues at all and fell right to sleep. I bought an oximeter and my scores for the past two nights have been a 10/10 with zero drops. I’ve also stayed in the 95-100% range 100% of the night. I’ve had a couple odd episodes the past three days during the day that I think are mini-panic attacks. I’m feeling that same wave of what feels like adrenaline pass through my body and it leaves my hands, arms, legs, and head tingly. Also makes me a bit lightheaded. I don’t know what’s going on, but I’m convinced it isn’t sleep apnea.

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becca17 +0 points · 6 months ago

It could be hypnic jerks and not sleep apnea. Reading This Is Natto by Daniel Erichsen really helped me. I know it iust sounds like another thing, but he actually talks about how all our efforts to avoid sleeplessness can actually cause it. Yes, even these crazy jerks. I feel compelled to pass this on as it really saved me, you won't regret reading it.

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joseph421 +0 points · 6 months ago

I get hypnic jerks where I kick my legs or jerk my torso forward. I actually love them because I know I’m falling asleep. This feels like a warm sensation that fills my head and wakes me up just as I start falling asleep. Sometimes I feel it come from my stomach into my chest and throat and it leaves my heart pounding.

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Sierra +0 points · 6 months ago Sleep Patron

The reason I ask if you are using a CPAP is that most CPAP's record very detailed data that you can view with a freeware program called OSCAR. You can look and see what is happening to your breathing pattern down to each breath you take. Here is an example from my sleep last night. For the first half minute or so, you can see the rough irregular breathing before I settle down. After that the breathing becomes quite regular except for a small glitch where the green vertical line is at 22:43:20. At 22:45:40 the machine decides I am asleep and starts increasing pressure. At 22:46:30 there is another small glitch in my breathing. However there is nothing like an apnea event which is defined as a stoppage in breathing for 10 seconds or more.

So if you do use a CPAP again I would suggest downloading the data from the SD card and look at it in detail to see what is happening. It may shed some light on what the issue might be.

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wetwilly +0 points · 5 months ago

It could be a severe case of "Paroxysmal nocturnal dyspnea"., the only difference is that instead of happening a few hours after sleep, it occurs instantly.

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