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Sierra

Sierra
Joined Jul 2018
Bio

CPAP: AirSense 10 AutoSet

Set to CPAP Fixed Mode

Pressure 11 cm

Ramp: Auto

Ramp Start: 9 cm

EPR: 2, Full Time

Mask: ResMed AirFit P10 Nasal Pillow

Canada

Sierra
Joined Jul 2018
Bio

CPAP: AirSense 10 AutoSet

Set to CPAP Fixed Mode

Pressure 11 cm

Ramp: Auto

Ramp Start: 9 cm

EPR: 2, Full Time

Mask: ResMed AirFit P10 Nasal Pillow

Canada

I should not paint all sleep clinics with the same brush, but many are really only in it to the point of selling a CPAP machine at a big markup. They pretend to offer follow up care, but really do not do much. Where I am if you get a "free" sleep study done and if you test positive for the need to use a CPAP they offer it at a cost of about $2500. Things have changes due to COVID and a microchip shortage but at the time the whole machine and mask kit could be bought on line for about $800. The difference is their markup.

The other little dirty secret of the industry is that the MyAir app sends very limited summary data over the air. If the clinic even looks at it, there is not much to see. However, AHI's over 5 should be raising red flags, and it sounds like it has not. MyAir is mainly intended for those who get their machine paid for by insurance or medicare on the condition that it is used a certain minimum amount. MyAir designed to measure that compliance, and not really to provide information on how the machine should be adjusted.

Approved clinics that sell ResMed machines should have a program called ResScan that produces similar report to OSCAR. The only way they can see the detailed data that you see with OSCAR is if you bring your SD card into the clinic and they download the data like you do with OSCAR and view it in ResScan. Only then can they see the details needed to evaluate what is going on and make good recommendations for adjustment. This takes time that they don't want to spend. Instead they want you to come in and do a sleep study which they can bill for.

Dirty secrets of the industry! But, I am sure some are much more responsible....

I don't bother to lock the cards before downloading the data. Both my machine and my wife's are AirSense 10's and I don't think they have this issue. Her previous machine was a S9 and OSCAR claims that might be a problem.

I look at that Daily screen primarily to see when the apnea events are occurring, and at what pressure they are occurring at, and of course the types of apnea and how much each contributes. Next I look at the Overview page. This has a bar chart by day which breaks down the contribution of each type of event. You can quickly see from that what types of events are occurring and if they are increasing or decreasing in response to settings changes. Last I look at the Statistics page to get a little more detail on the breakdown of events. This page will give a running average of your AHI for each setting. A new line starts each time you change the settings. It keeps a useful history of what setting you have tried and what the AHI outcome was for each.

A couple of comfort and convenience things you could consider are:

  • Change the Ramp Time to Auto, and set the Ramp Start Pressure to 7 cm. Instead of ramping up the pressure based on time, it will start at 7 cm and hold there until the machine determines you are asleep. Then it will ramp up to your minimum set pressure. The maximum time it will hold is 30 minutes, and then it ramps up regardless. This can be more comfortable when going to sleep.
  • Turn your Smart Start to On. This setting will start your machine automatically when you put the mask on and start to breathe. It will also stop it if you just remove the mask. However, my habit is to turn it off manually before I take the mask off.

Good luck! Post what you get with EPR at Full Time. That may make a significant change, hopefully for the better.

I am a determined mouth breather. My solution has been to use two layers of tape. The first layer is 1" wide 3M Micropore tape which you can get at Walmart. I fold the end over to make a tab that I can quickly remove the tape in an emergency. I have never had to actually do it. At first that is all I used, but found it was coming loose at night and not sealing for the whole night. So then I added a wider second layer of tape 4" wide which I cut to about 60 mm long. It is called Molnlycke Mefix. It is more flexible and keeps the first layer on through the night. You probably have to go to a medical supply place for this or to Amazon, which is the last place I bought it at. Again I fold the edge over in case I have to remove it during the night. This works for me. You may get away with the Micropore tape only.

This said, I think your leaks are so large that I suspect your mask is become dislodged at night totally breaking the seal to the face. The first step may be adjustments to the headgear. Unfortunately too tight is not good either. It may take a different style of mask to get to a happy place. What mask are you using currently? I see it is set for full face.

There is nothing wrong with having the mode in AutoSet at least initially. However, when you nail down the best pressure it can be worthwhile to switch to fixed pressure CPAP mode. That is what I do. My wife still has her machine in AutoSet but with a very narrow band between min and max pressure. That is almost the same as fixed pressure mode. She averages less than 0.5 for AHI so I don't like to fool around an change it. Also if I change something and she has a bad night sleep then guess who gets blamed?

As for quirky things to blame or solve issues here are a few of mine. I blamed the weather, and more specifically the atmospheric pressure. After tracking it for a while I found that was a red herring. On the more successful side I have found that keeping the temperature cool at night seems to help. And the other thing is using a down alternative pillow that conforms to my head, and a satin pillow case cover. I believe it is slippery and helps to not drag the headgear out of place on my head. And I find the down alternative does not push back against my face and move the mask out of position. You mention shaving. I shave and wash every night before I go to bed as I think that makes the tape stick better and not come loose during the night!