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Biguglygremlin

Biguglygremlin
Joined Nov 2018
Bio

Male aged 60+

Overweight

Very Severe Apnea

CPAP user since June 2014

Resmed 9

Pressure <12>

Nasal Pillows

Philips Nuance

RLS PLMD PTSD CFS RBD

Australia

Biguglygremlin
Joined Nov 2018
Bio

Male aged 60+

Overweight

Very Severe Apnea

CPAP user since June 2014

Resmed 9

Pressure <12>

Nasal Pillows

Philips Nuance

RLS PLMD PTSD CFS RBD

Australia

Well this is a fun thread and less tactful that is normally tolerated.

Sorry SleepDent but despite my respect for your beliefs, I'm fully behind Sierra in this one.

Yes, on a bunch of technicalities and rare improbabilities, there are some good arguments for doing a sleep study in a clinic.

In a perfect world I'd like to be under 24/7 surveillance by every specialist known to modern science ......... just to be sure! :)

BUT in the real world of complex issues, limited resources and conflicting domains Sierra's arguments make sense.

Most patients are still alive and not yet dependent on CPAP when they initiate enquiries regarding Apnea and, presumably, they are under separate medical supervision for any other illnesses, the APNEA in itself is not usually life-threatening at this stage so I think the implied peril might be a bit overstated.

The APNEA investigation process can take months to implement effective treatment, during which time the patient should be following up on any medical issues with someone who is actually qualified to deal with them.

Anything that simplifies the APNEA process and facilitates it for a wider range of potential sufferers warrants fair consideration

Anyone who implies that cost doesn't matter must surely be delusional or overselling something.

As I understand it the home study equipment is improving and presumably will continue to improve. Generally it does what it is supposed to do.

The Home Sleep Study was only ever used as a general indicator which should also be true of Sleep Clinic results. Abnormal studies in abnormal circumstances can never be a true indicator of normal responses. Nothing to do with APNEA, IMO, is an exact science.

I too did a home sleep study and for me it was effective and convenient and as to Sleep Clinics, I know of many who have expressed bitter disappointment and disdain or similar negative views regarding their experiences there.

Unfortunately I don't have Sierra's faith in the machine to diagnose and treat APNEA but surely the sleep industry must believe in the machines or they shouldn't be selling them.

Arguments and squabbles over technicalities and territory are fun, but it's the results that matter.

My crystal ball is broken regarding the future of APNEA treatment but, in the past, a Home Sleep Study and the supervised application of a CPAP machine delivered the fastest, most convenient and least expensive results.

From my first mention of APNEA to my doctor, to being issued with a CPAP machine, was about a week and cost me $80 plus a small contribution to help offset the cost of the machine. (We have a health system in Australia that still works, despite constant pressure to adopt American Health policy methods of privatisation, price fixing and market manipulation.)

If it had been much more trouble or more expensive I would not have bothered.

This is a subject that I have been wondering about for some time now, not just because I have a permanent trench across my head from the mask strap that I have worn for 15,000 hours but I also have a CT scan that shows an obvious gully in the bone across the top exactly where the strap goes.

I was not aware of this for the first 50 years of my life, so I can blame it all on the CPAP right?

The following points might seem unconnected because they probably are unconnected.

Yesterday when I was young so many happy songs ........ Oops I digress.

It seems to me that when we were younger the flesh on our skulls was thicker and more resilient. Dents were easily formed in that soft flesh and just as easily faded.

Most of us had no particular need to map the topographical features of our skulls and a thick layer of pliable flesh and an even thicker forest of hair concealed most of the hills and gullies.

I think that as we age the flesh on our skulls becomes thinner and less resilient and the tracks of our mask straps become almost permanent.

So can I blame the CPAP for the dent in my skull?

Unfortunately not, because I think that as the hair and the scalp both got thinner, that gully, which is probably not uncommon amongst adults, became more obvious but, in all likelihood, it was there all along.

So my theory is that in most cases normal processes of ageing have revealed pre-existing anomalies in the skull shape and lack of resilience of the scalp has embedded the path of the straps, perhaps even in the same place, but these factors are most likely unconnected.

Hi Sleeptight

I didn't realise that CPAP went back that far.

I would also like to know if it is possible to escape from the machines after a protracted period of usage although, like yourself, I can't even nap without one.

I doubt that I could reasonably expect to escape from my cursed machine but I believe the question is important and should have been researched and strategies developed and implemented a long time ago, but in an industry that is all about immediate sales and control there is no perceived benefit.

Not sure how the machine itself would answer it Sierra. I doubt that an automatic machine would wind itself off entirely and even a low pressure could make the difference between breathing comfortably and not. Perhaps I am missing something here.

Probably the only way to really know what your current sleep status is would be to cease using the machine and do a sleep study without a CPAP but there must be some aspect that I just don't understand because I suggested doing that in a sleep clinic here and they looked at me like I was a basket case.

Anyways, the airflow is just the physical aspect of it. I wonder what level of dependence is Acquired on a psychological and emotional level especially when so many CPAP users seem to be dealing with (or end up acquiring) anxiety issues.

I have tried to raise this query before from a number of different angles but this forum seems focused exclusively on supporting CPAP usage, which may be a worthy cause, but the result is that serious doubts and escape options are largely ignored and effectively taboo.

The irony of it is that serious questions and diligent research that helps us attain comprehensive answers and increased understanding usually leads to new fields that can also be exploited and converted to revenue.

Avoidance of these kinds of queries and the issues underlying them is just short term thinking.