Forum · Is there anyone with an actual success story?

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[-] Athena1965 +1 point · 3 months ago

I was told by my sleep doctor to seek out success stories.

So far the success stories pretty much go like this: after three months of doing this that and the other thing in order to adjust to my CPAP I'm finally getting 2 to 3 hours asleep at night with the mask on. I still have lots of fatigue and I'm hoping it'll go away eventually.

At every turn I've pushed really hard to figure out what the problem is and after year I finally have been adjusted to my CPAP machine, success

After using a 400 different masks getting 35 different kinds of humidifiers 92 ways of dealing with the hoses 450,000 pressure adjustments I finally made it work after two years, hooray.

Sorry I don't find any of the success stories. It seems to me this is a racket. DME companies are making a lot of money to sleep centers are making a lot of money. And the patients are left on their own. And if you can't adjust its your fault.

I don't even have my machine yet and I'm ready to give up. Is there any hope?

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[-] wiredgeorge +0 points · 3 months ago Sleep Commentator

I wish more folks showed up just to brag about their success but like me and you, I guess, we came looking for answers. Success generally takes a bit of work, In my case, I am now a 100 percent success due to therapy. I ride a motorcycle and would sometimes nod off for short periods. I use power tools all day long and would sometimes nod off while using power tools and worst, I fell asleep all the time while sitting in front of my pastor while he was preaching and my wife made my ribs sore with her elbow. My blood oxygen level was dropping to low 70s during apnea evens.

I started therapy with ZERO medical support; handed a machine and mask and told to go make it work. I demanded to see my test result and prescription and started looking into how to make things work. It took me longer than it should have but I figured it out and today I get into deep sleep quickly and have very few apnea results. I feel 100 percent more awake during the day. If I don't get the help I pay for, I complain and if that doesn't work, I figure it out myself and this board is a great resource; some other boards have a lot of dangerous amateur medical gurus...

There is one success story and there are lurkers out there who could chime in; many of them.

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[-] Athena1965 +0 points · 3 months ago

Thanks again wired George!

You make my point. Individuals can have a success despite the lack of support in the medical community.

I just chatted with a friend of a friend who actually likes his machine. I asked how long it took him to get used to it. He said he is still not used to it. I asked how long he has had it. A year, he happily told me.

If it is a year and I am not used to, it is a failure. It would only be a succcesss for the DME at that point.

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[-] PersistentCobaltBlueNewt1334 +0 points · 3 months ago

I got my APAP machine 7 days ago. I thought I would be going through he** for months trying to get used to the thing.

I wore my nasal mask for a few hours before I went to be the first night just to get used to the feel. I went to sleep that night and never woke up until the alarm went off at 5am the next morning. For the last 7 nights I put my mask, my machine comes on, I go to sleep and then it ramps up, I guess. I never wake up. The pressure never bothers me during the night. I never wake up and find my mask across the room. I don't have any air leaks around my mask and I had .6 events per hour last night, which is high for me.

I feel awake and good during the day. I don't have to take naps in my car during lunch time. I don't feel like I'm not going to make it through the day at 8 o'clock in the morning. I don't come home from work and go right to sleep any more.

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[-] BrightSpringbudSandpiper5105 +0 points · 3 months ago

There are good news stories. Give it a real go.

I feel that APAP has been successful more or less from day 1 for me. I have probably used the machine nearly every day for 10 years, may have missed less than 7 days in total in all that time. Only time machine doesn't work is if I get a cold, have a severe hangover (which blocks up my nose) and hayfever. I can tell it does work.

I have been using CPAP/APAP for 10 years from early 40's. I never felt tired up until when I had my sleep test, I only went in for testing because my wife said I was stopping breathing at night and my snoring was driving her nuts. One of my brothers had been diagnosed with apnea and it was said it tends to be a genetic thing. The test showed I was at the low end of the severe end of the apnea scale (not moderate). Surprised the hell out of me. I therefore suspect apnea sometimes comes on gradually in a way that you don't realise a decrease in brain function or other symptoms. My brother had been dozing and falling asleep, it was obvious and quite serious. I never fell asleep during the day and I slept well at night (so I thought).

I had noted I slept longer and woke up a bit more tired unless I got some extra hours sleep but I wasn't falling asleep or anything. I put the needing a sleep in on the weekdend down to getting older. I used machine and within 1 to 2 weeks I noticed my brain switched on as soon as I woke up just like it had when I was younger. I used to bounce out of bed an early bird in my teens and twenties. So for me the real symptom was reduced brain function especially in the early morning and the need to go to bed earlier at night.

Other than I am getting older my brain is fully alert when I wake up each day since I used APAP. I can really tell the difference if the machine hadn't worked over night (mask pushed off face, nose totally blocked up etc). It definitely solved the snoring.

Have no idea if it helps prevent other health issues but I continue to sleep well, not snore, and consider it a successful strategy. Latest machine is also an improvement in quietness and comfort compared to the one of 10 years ago.

I am a fan, it is worth persisting with.

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[-] reddeb +0 points · 3 months ago

Hi Athena1965, I have actually gotten great results so far and I have almost 3 months under my belt. I didn't start noticing my daily energy until about 2 months in. I use to take naps every day and still nod off in the recliner throughout the day. I now don't sleep during the day at all. When I was diagnosed the doctor said I had severe apnea with 63 events per hour. For an example here are my readings just last night... 0.1 events per hour, and I have been averaging 8 to 9 hours sleep each night!!!!!!!

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[-] ImpartialVioletRhinoceros2234 +0 points · 2 months ago

I think it is largely a racket. My company told me that 65% of the people who have machines don't use them. I use mine periodically, but have never had much success and find the whole thing very frustrated. I'm very tired a lot of the time and wake up feeling completely unrefreshed. And doctor's don't seem to have any idea what to do. Good luck.

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[-] StraightforwardSilverGuineaFowl6145 +0 points · 2 months ago

I'm new to this site and am wondering WHO gives us our Reply names???? Anyway to impartial violet Rhino, who thinks Apnea machines are a racket-you have to use your CPAP machine every night and all night to get the benefits!!! You're tired because you aren't breathing and not getting oxygen to your brain. What I get fed up with are horrible medical equipment companies ( which I also have) who don't take the time and effort to fit people with masks that FIT and are comfortable!! I finally got (by mistake) a mask that fit, but it's a small and this stupid company sent a size medium insert!!! The small mask decreased my apnea events from 40 an hour to at most 8-25/hour. You have to get a mask that fits and YOU have to USE your machine every night. It is YOUR responsibility to get used to it or else you will keep on killing your brain cells! Doctors do know what to do if they sent you to get a Sleep Study and prescribed a machine. Now it's your turn to USE it or if not, stop complaining!

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[-] wiredgeorge +0 points · 2 months ago Sleep Commentator

The usernames are miserable, aren't they? Anyway, go to the icon to the left of the search icon at the top of the page and you can then figure out how to sete your own username.

As far as sucess stories, I imagine that 95 percent of the people who are really satisfied with the results of their therapy won't bother seek forums such as this ones; mainly only folks who are new to therapy and looking for answers or support or people with real problems. I have also found that a lot of folks in our society want someone else to take charge of their problems. The DME and professional support surrounding sleep apnea therapy can be a problem for some folks so it is always the best course of action to take control of your own therapy through self education and using the good reason put into each of us to figure out the best course for your own therapy.

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[-] ReliableCeriseSheep1815 +0 points · 14 days ago

I had the same situation as SSGF6145 and achieved just enough success with my first full face mask to think I was "cured", or at least achieving optimal results. After dealing with anemia severe enough to require transfusions, and sticking with an ENT who was not a sleep medicine specialist, I had a sleep study 6 years after the first one. A new machine with more readings detected leaks in my new mask but I was so impaired that daily functioning, not to mention following up, was extremely difficult. It took switching to a pulmonologist specializing in sleep medicine and forceful dialogue with my DME to get a refit session for the correct size mask. I really don't know how I managed to function as well as I did and am still recovering. The best advice I can give is to assemble the best team you can and do your best to monitor the situation. I honestly felt like a zombie and my life and relationships suffered. Never want to go back to the way it was before!

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[-] FalconsFan +1 point · about 2 months ago

My success was immediate. Sadly most doctors want money and not really to help you... I went to a pulmonilogst in a Jacksonville Florida who came highly recommended by some friends.

From the very beginning I was just like you, not sleeping much, fatigue, blah blah blah. I found out I was a nose breather so I was able to switch to a much smaller mask. Immediately with the new mask, I've slept all night.

I would suggest trying different masks, look for comfort, be patient, trust your machine.

I never sleep without mine and haven't since I got it. I average 8 hours per night.

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[-] GoodTurquoiseGaur4005 +0 points · about 2 months ago
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[-] AmiableIvoryCheetah9374 +0 points · about 2 months ago

My success was very quick (within 2 weeks).

I was caught sleeping on the job and nearly lost my job. I had never slept on the job until my 28th year of employment. I started sleeping on the job about 6-7 months prior to having my second sleep study (May 2017).

I knew I had Apnea (I was diagnosed after my first sleep study back in 2010), but I'm very claustrophobic and could not find a mask that would work. So, I had refused any treatment for my Apnea for nearly 7 years.

I seemed fine until 2016, when I noticed that I was extremely tired all the time. It was difficult staying awake simply driving home from work. I knew I was bad, but I did not know how bad until I had been on the Bipap treatment for a few weeks. After a few weeks of treatment, I realized that I had been in a zombie like state. Before my treatment, math puzzles that I used to be able to complete in minutes were now very challenging. Some of the math puzzles I could not even complete. I was falling asleep while talking to family members, while watching movies, while reading books, while working on the computer - I had never had these issues one day in my life.

A few weeks after treatment, it was the difference between night and day. I was instantly energized. I felt like I had 20 years earlier. It was an instant game changer for me.

I was lucky that the DreamWear mask existed. I was able to get past my claustrophobia.

Every night is not perfect, but I wear my mask at least 7 hours every night. I now find it nearly impossible to go to sleep without my mask.

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[-] DecisiveSpringbudMantis1902 +0 points · about 2 months ago

I would like nothing more than to share my success story. Truth is, my story will likely end in tragedy. In the end we are nothing more than a mere statistic.

We may have crossed paths over the years.

Nonetheless I used to be there for you, your loved ones, friends and neighbors. Through countless nights, weekends, holidays, rainy days and horrific days, I absorbed a part of your darkness moments. Provided compassionate care and treated you with dignity and respect. If there was a tool in my bag of tricks to alleviate your suffering, it was used with skill and precision in the endeavor to effect a positive outcome. I chose this profession for the purpose of serving others. Its was never about the shitty pay, marginal benefits, insane hours or arduous working conditions. It was just the right thing to do.

One day I woke up exhausted, my spirit broken and in need of repair. Despite my best intentions, the exhaustion became worse and worse. The sum of twelve hours of sleep or 2 hours of sleep was equal in its affect on my overall well being, not enough.

Determined to eat chicken soup until my soul was fixed, I continued to compensate for the exhaustion with changes in my diet, praying to Jesus, giving up caffeine and alcohol, working more, working harder, energy drinks and micro naps. My world continued to unravel. I lost my job, health insurance, experienced homelessness, found a leaking boat to live in, failed at all attempts to self medicate, became sober, realized that was a good start but not the answer, struggled to live from day to day ever since. I returned to college part time and quickly realized something was wrong with my brain. I would spend 2 hours studying a topic, only to forget important details the following day. So I studied more. And kept forgetting vital information. So I studied more, and more, and more. Despite this, I still continued to experience some sort of cognitive defect which was atypical as I have always achieved high marks in school. Then I experienced a first ever seizure. Today I forgot my PIN number that I have used for years.

Eventually I learned about obstructive sleep apnea and its correlation with other maladies. This was quite alarming as my symptoms were multifaceted and severe. I began to seek medical attention, however without insurance the hospital referrals were useless pieces of paper and only used to absolve the guilt and legal responsibility of the Emergency Room. The very same hospital that claimed my symptoms and undiagnosed sleep apnea were detrimental to my health, life altering and potentially life threatening. I was told that I am at risk of having a stroke or heart attack in my sleep. The doctor told me they would treat me for a heart attack or a stroke after it happens, but unfortunately cannot provide ANY treatment to prevent this from happening. Supposedly my life has value. The ugly truth is that our value is only defined by the quality of our insurance plan or ability to pay out of pocket.

I have lost my purpose and ability to help my community. Lost my faith in our healthcare system. Lost the faith in the community I once served. I have lost hope.

I have been denied and denied again medical coverage.

Our healthcare system is broken and it’s going to require more than I am capable of giving to fix it. What I am experiencing should not be endured by any of our countrymen or women. We take care of our military veterans, we take care of people thousands of miles away, we take care of people who are in our country illegally, we take care of our enemies, however we do little more than offer lip service to our first responders and public safety professionals.

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[-] N4NW +0 points · about 2 months ago

Not really, the CPAP seems to work fine, I cannot find a mask that prevent DRY MOUTH, which awakens me every couple of hours and results in unsatisfactory sleep. I have been fighting this problem for six months since I got the Resmed Airsense 10. Had five different masks with varying results NONE of which has helped with the DRY MOUTH problem.

If DRY MOUTH could be solved then CPAP usage would be perfect. Any solutions?

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