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Biguglygremlin

Biguglygremlin
Joined Nov 2018
Bio

Male aged 60+

Overweight

Very Severe Apnea

CPAP user since June 2014

Resmed 9

Pressure <12>

Nasal Pillows

Philips Nuance

RLS PLMD PTSD CFS RBD

Australia

Biguglygremlin
Joined Nov 2018
Bio

Male aged 60+

Overweight

Very Severe Apnea

CPAP user since June 2014

Resmed 9

Pressure <12>

Nasal Pillows

Philips Nuance

RLS PLMD PTSD CFS RBD

Australia

I can't see the local companies accepting returns under the present circumstances and even if they did the cost is often double what it would be to purchase the same item direct from the USA.

The machine is usually set for around 12 so the pressure is not that difficult to manage and I am pretty good at ignoring minor leaks.

There was some urgency because the Nuance was effectively smothering me in my sleep but I have made a few adaptations that might keep it functional for a bit longer. This was a really good mask which is why I stuck with it for so many years and why it's going to be hard to find an equivalent replacement.

For the moment I have wound some soft garden wire around the base of the pillows to prevent distortion and reduce flexibility. It makes it a bit clumsy but at least I can breathe.

Yes a nasal mask might have been an option but I doubt that it would work for me, not only because of nose size, but because of topography and the state of my skin and also because of persistent itchiness some of which I still blame on static.

I think I would need to try the under the nose slot type masks before I could have any confidence in them.

I had wondered about the Aloha because it looks impressive in the picture but there is no way to know how big it really is.

The one that I am tempted to buy is the P10 because it is essentially what my latest adaptations have turned the Nuance into. Once again it is difficult to determine it's relative size and the strap mounts could be problematic. Another concern is that the straps look rather flimsy and I can't afford to be buying parts on a regular basis.

This thread was diverted from a more general discussion. Preparing for Serious Illness

Masks depend on the topography and structure of our faces to function properly, especially our noses but as we get older things change.

My mask is not working and, unfortunately, this discussion is relevant to the search for a new mask but it's not something I'm comfortable talking about.

Why is it not working now?

The answer was foreshadowed in this thread from a year or so back.

Size Matters

For the past six years I have been using the Nuance Nasal Pillows Mask with the largest cushions they provide. It's been a great mask and has worked well for me ....... until now.

Although I obviously anticipated mask failure 4 months back, when I started the Preparing for Serious Illness thread, it never occurred to me that my nose would eventually outgrow those large cushions, but now they fall in, which wouldn't matter a great deal if they fell in totally but only one side of each cushion falls in, which twists them sideways inside the nasal passage and, you guessed it, blocks both the hoses and the noses!

Feel free to laugh. I've turned the sound off! :P

Google, which usually has an answer for even the most difficult problems, was no comfort at all.

How Age Changes Our Appearance

So now, not only do I have to find a new mask, but it has to be adaptive enough to work for a not so tiny nose.

Am I the only one who has this problem?

Any suggestions or experiences would be appreciated.