Number of posts:
I thought I had posted this AM but I guess it didn't go through. ResMed cards have most of the info missing unlike commercially available cards. The cards are type SDHC and the larger/old type that is about twice as large as the current offerings. The size is called the "form factor" and the one used in the ResMed machine is 32x24mm (the biggest). If you can find an original SD card, the ones used in the ResMed reader are that size BUT the SDHC have a higher capacity than the original. Since ResMed has disguised capacity, suggest the largest you can get; perhaps 32gb.
See the wikipedia article at:
The ResMed card is clearly marked SDHC.
Bwhahaha. I used to sleep on my side prior to therapy. When I started therapy, I was give a big and cumbersome full face mask and was forced to sleep on my back. I had never slept on my back prior. I played football about 100 years ago and have some fairly significant residual damage in two place in my spine and I would wake from horrible pain. I discovered if I propped up using a tv wedge shaped pillow with a regular pillow on top, I could sleep on my back. Later I changed to a mask that allows side sleeping but still sleep exclusively on my back. I also think that if someone is a habitual snoring machine they can snore on their side as well as back. That shirt has to be one of the strangest things I have seen. $90!!! I think I could sew some cans of peaches on the back of a $5 tee shirt and get the same effect.
My sentiments exactly on the shirt.
I’ve been using the Simplus full face mask and mostly don’t have a problem sleeping on my side. I may give the nasal pillows a try now that I’m used to the CPAP at large, though, I tend to open my mouth and would just have to use a chin strap anyway. Once I know if they’re going to switch me to a BiPap I’ll figure that stuff out.
in your self education regarding sleep apnea, this stuff will come. Suggest you start leaning on google to help with acronyms you don't know. Kind of like a baseball fan using terms like ERA and RBI, etc. All ball fans will fall back on those acronyms as their meaning is widely known. Problem with PAP therapy discussion is there are a lot of terms and acronyms that are uncommon and folks often ask about things related to these terms. I have to look them up. If you start looking stuff up, you will self educate and I am one hundred percent certain that your knowledge will make you a lot more effective in your own course of therapy.
The person you replied to uses a full face mask per his post. I am of the opinion that most PAP therapy patients breathe through their mouth. The jaw slackens as it relaxes and bingo, the mouth is open for most patients. A full face mask may help some whose mouths are open but it didn't help me as the mask lower edge would slip into my mouth and all of a sudden there was no seal OR positive air pressure. I chose to use a boil n bit mouth gaurd which has proved effective now for several years. Others use the bands and some the tape. Having a beard makes the tape option kind of useless for me and I don't like the thought of tape over my mouth. Ever had acid reflux? The tape would really be problematic in that case.
First, understand your DME is paid by insurance to send re-supply items. They will send as much as they can to ensure the bill is at the max the insurance payer will eat. Call the support folks at your insurance provider. I was on Humana until I started Medicare a couple years ago and they both sent about the same amount of stuff. I am not sure if there is some guideline they use so you can only contact your insurance. As far as how often to change stuff, I seldom change masks and it is usually because the headgear is shot as the mask part doesn't seem to wear. The cushion is another matter. I wash the cushion daily and over time it tends to make the cushion material a bit soft and the thing will leak a tad. After a few days of leaks, I change cushions. I do this perhaps once every 3 months or perhaps a bit longer. I get little filters for my ResMed Aircurve 10 and you are not supposed to wash them but I do. I almost never change hoses or water tanks; did change a tank about a month ago as it was leaking a tad. All in all, I get a bit more of this stuff than I actually use and have a good size pile of stuff. I think that gurus who suggest changing cushions on some sort of schedule are, well, (trying to find a nice way to say this), well not right. Change when needed. As far as liners, never heard of them by prescription. I used them with the Simplus mask and they are stupid expensive for bits of crudely cut out tee shirt material. I had to use them to keep air out of my eyes so used one of those several days till they got out of shape. I tried washing but they stayed out of shape and would likely have to be ironed to be suitable for reuse. I don't use them with my Amara View mask as I am leak free with this mask about half the nights and only have minimal leaking otherwise. Hope this helps...
I believe it does or at least the slot is there. The SD slot is on the upper right corner on the side of the filter. It is the large size SD card type on my machine. The card is under the door of the card slot is removed by pushing it in and the card will pop out. If your card is missing, you can get another and I don't believe it is a proprietary card so you should be able to find one at Walmart or similar. I am not sure how to tell SD card types apart unfortunately other than size.
I have to know what a "sleep shirt" entails! Sounds like it emerged from the Spanish Inquisition...
Haha. Indeed, wiredgeorge. My doc was trying to give me a more affordable next step since my co-insurance would have left me with $600 out of pocket for another study (which is a problem I’ve since remedied, allowing me to afford the study). The shirt just seems like a silly waste of money. I don’t sleep on my back much. My clinic suggests I do more than I think, which is possibly true, but I doubt it’s even 20% of the night. All I do is toss from one side to the other all night. I’ve slept like that for years.
Here’s a link to the shirt! https://www.antisnoreshirt.com/Rematee_AntiSnore_T_Shirt_p/ts.htm
Henry Kett, 1814:
...observed the eminent lawyer, "I hesitate not to pronounce, that every man who is his own lawyer, has a fool for a client."
Seems to me that a strategy of avoiding professional help and seeking medical guidance from amateurs on a message forum may somehow relate to the old saying above?
Since you didn't bother let us know what machine you have, specifics are not possible. I am on a Bipap machine which has a set inhale pressure and set exhale pressure. The idea is to allow easier breathing and in my case this is because #1 my inhale pressure is 25 (exhale 21) and #2, the Bipap is the only machine capable of 25 pressure; Cpap machines are typically 20. I needed 25. In my case, do I need the lower exhale pressure which was set to allow more comfortable exhale? Not really, as I have played with the number to see what happened and have set the exhale to 25. I have a Resmed Aircurve 10 which has Bipap mode (and several others and is more expensive than their Airsense 10). I doubt there is any downside to decreasing the exhale to comfort level but your machine may or may not be able to do this function unless it has a Bipap mode. Unless your prescribed Cpap pressure is over 20, you may not have a Bipap capable machine. What machine do you have?
Rob, this sort of thing is like asking why a pair of shoes causes blisters on your feet. Try a different mask type. I can only say that i use an Amara View and don't get sores but not sure if it would help you same as my shoes may or may not be right for your feet.
Very good analogy!!! Thanks!!!
Sure... have tips!
#1 Let folks know about your equipment if you have an equipment related question. Pressure setting(s)? Mask type?
#2 Dry mouth... mouth is open while sleeping. Check the previous zillion posts on the subject for possible ways to mitigate this issue. Chin strap, mouth guard, tape, humidity, etc.
Is there a physiological reason for high resistance to air flow? Some physical characteristic that causes this issue or is the syndrome not understood well enough to pinpoint cause?
If the nasal mask bothers you, I use an Amara view which is a full face BUT doesn't have a support over your nose and the top of the mask fits just under your nostrils. I don't get a sore nose. The material is very pliable and soft where it contacts your skin. The secret is wearing the proper size cushion.
Amazon sells chin straps. There are different types (tension and width) and they work for some and not some much for others. Therapy is a game of discovery for what works for you! I have found a combo that works well for me but if you tried the same things, they may not work. Just don't feel afraid to experiment.
Very few professionals haunt this or any sleep apnea forum. The ones who do tend to be dentists and out of professional courtesy may not want to contradict another doctor in a somewhat related field. The amateurs who come here generally do so when first diagnosed or are just starting therapy looking for answers and seldom stick around to try and help folks. Keep in mind that medical specialists tend to see problems, symptoms and such through the prism of their own specialty and get tunnel vision so can't really look to alternatives as well as they should. Just human nature so best you be the captain of your own situation. Try and find out as much as you can as there are others out there who have written about the same symptoms you are having. Good luck!
I am looking for replies that have encountered my same symptoms/
situation, have not seen any at this time. I would like to know how they deal with it. Thanks again
Just a rank amateur here... you wrote: "But in the detailed info with position the info was very different....no OA, CA,MA; 8 HYPs with AHI of 11; RDI of 19. "
What does detailed info with position mean? How can you have an AHI of 11 with no OA or CA? AHI means apnea events and OA an CA are apnea events. Something doesn't add up. Since you spoke with an "MD" and didn't get clear answers, I am guessing the MD is more used to treating measles and foot fungus and such rather than sleep disorder. If a person is a true expert, they could explain in a manner that made sense to you as you are obviously an intelligent person.
OK, my best guess on the insomnia is that is isn't fully related to sleep apnea. I am thinking the lack of REM sleep definitely is. Prior to therapy, I hovered in kind of a half-sleep and dreamed vividly and constantly. A further symptom was getting up every hour or two thinking I had to visit the bath room. I started therapy and have not gotten up once in years and don't really remember dreaming much. Your non REM sleep sounds pretty much the same. The 85 minutes to nodding off with a "sleep aid", sounds odd and that may be an insomnia related issue.
What type of doctor are you looking to for sleep disorder and insomnia help? Sounds like a specialist in this area might do the trick and if this doc you have IS a specialist, you may have the wrong doc.
Ten months ago and not another post from the OP. Perhaps someone else will have some insight. This is definitely something that should be discussed with your doctor.
Well, that's a new one! Welcome and I have been on PAP therapy for several years and only clean my mask cushion with mild hand soap where it contacts my skin. I never wash anything else but do RINSE the tank every now and then. Honestly, I just can't think of how a So Clean gizmo could make your AHI go up but stop using it for a few days and just clean your mask cushion to see if it goes back down to very acceptable range where it was previously. If the So Clean is the culprit, well, you can figure out the rest but if the AHI stays up 8 to 15, then something else is... good luck.
I thought folks were nuts when they reported a belly full of air. Until it happened to me once.... Pain woke me and when I sat up there was a mighty volcano of air from my gut that came out. It is from air going down the wrong pipe and I have no idea why it happened or what can be done to mitigate this but it is for real. I didn't have any problem "alleviating the gas" as you put it so can't help with that. Don't think your machine settings are a cause and the finger bloating and nose sore need to be dealt with. I wear an Amara View full face that covers my mouth and fits up against the bottom of my nose so no bridge of nose soreness. You might want to look for this type mask. Let you in on a secret; a mouth breather isn't fixed by wearing a full face mask. You will have your jaw sag when it relaxes and your chin will go downwards and the lower edge of the mask will end up in your mouth. I correct his by using a boil and bit mouth guard which prevents the jaw from sagging and others use a chin strap and some tape their mouth. With a pressure of 10, you might be candidate for a nasal or nasal pillows mask if you can get the mouth closed all night.
For your ENT to write off what you are experiencing as sleep apnea related is not very professional. I don't think your issues are consistent with a sleep apnea problem at all and although I don't know what to tell you as far as moving forward, I will tell you that you need to stick with your primary care physician to explore all avenues of medical expertise. You have probably already started down this path and I urge you to stay on it till you get it figured out.